It is with great sadness that I tell you guys that this sweet girl gained her angel wings this morning. Sophie fought long and hard against bone cancer and she did so with pure joy and positivity through everything. This sweet girl started her cancer journey not too long before me and I have felt so connected to her and her family throughout her journey. Please hold your family tight. This is not fair. Sophie, fly high my love. We won't forget you🎗💛🎗💛 @superstrongsophie #takeasophie #stickyourtongueoutatcancer https://www.gofundme.com/Super-Strong-Sophies-Sparkle
I took a break from this account after getting the cancer free news. I wanted to take some time to let it sink in that I'm gonna be okay. After 11 months I am cancer free and it's a huge weight off my shoulders. I now have to start to plan how I move forward from here. I think the fear of the cancer returning will always be there, but I can still do so much with what is left of me. Sure I'm missing half a lung, my thyroid, most of my parathyroid function, and have severe renal damage; but I'm still standing. I won this round. I'm so excited to continue and improve my running and I am excited to see how this next chapter plays out! Here's to a cancer free body!
There are too many words to say right now...so I'm going to keep it short: I BEAT CANCER
Today was hopefully the last time I will ever swallow a radioactive pill. Radioactive isotope I-123 today. Not a harmful dose like the one I took in March (I-131). Enjoy my radiation anthem with a snapchat filter🎗🎗
Well as of right now there are no plans for my 1 year cancer scans. Yesterday afternoon I received a devastating call telling me that a technician at the hospital forgot to order the necessary hormone infusions I need for scans. All three days of scans have been cancelled with no dates rescheduled. I usually try and keep my head up but after hanging up the phone I just broke down. I spent almost a month coordinating these appointments along with car rides and schoolwork. This was three months ago. This was an error out of my control but it impacts me greatly. I have been waiting for these scans since I was diagnosed in January. These scans could take some weight off my shoulders or they will give me a plan for more treatment. On the bright side: this bracelet came in the mail last night and really lifted my mood. It reads:Mountains to Molehills. To me it signifies how I have climbed mountains in this journey and stuff like this is a molehill in comparison. I'm going nowhere cancer🎗
The anxiety that comes with scans is all to real. Scans next week. Let's hope for good results🎗
It's not homework if I dont have a handful of pills to keep this body workin! I am so thankful for modern medicine and how I am able to maintain this quality of life without living in the hospital. As Thanksgiving approaches make sure you reach out to your family and friends and see how they are doing. The holidays can be a hard time for people with illnesses because many times they are the last person to be thought of when a group plans an outing. Sure you may think you sick friend "can't" or "doesn't want to" come along, but you don't know till you ask! Just try your best to include EVERYONE. That way you can make the holidays more enjoyable for you and everyone around you!
It's a happy kind of day today! Its been exactly 3 months since my last seizure. 3 months seizure free means I can drive again! Better watch out Kalena is back on the roads!
Voted today! The hair still makes people think I'm a boy but hey at least I look young!
I just want to take a second to talk about pets and coping with illness. I personally love animals and I am lucky enough to live in a place where I can keep many pets. I have found that through this long journey of illness I have found a lot of hope and peace in my animals. I met with therapy dogs in the hospital and I was lucky enough to come home to my cats, alpacas, goats, and dog. No, they don't heal me; but they give a sense of calm and general happiness. It's so nice to take care of something else when all it seems I do is fight to take care of myself. Here are just a few candid photos of me and some of my buddies! (Two of these dogs belong to friends)
I am so proud and thankful to be on this team💜💛 https://www.stevenspointjournal.com/story/sports/2018/10/23/uwsps-kalena-clauer-serves-advocate-childhood-cancer-awareness/1662666002/
"Just be a runner" -Coach This is what I heard when I was racing today. I can't even say how great it felt to be an athlete and nothing else. I wasn't the kid with cancer. I wasn't the kid missing half a lung. I wasn't the kid fighting for her life. Don't get me wrong, I'm proud of where I am at, but sometimes it's nice to feel like the old me. The healthy me. But here's the thing, I can be an athlete AND a medical anomaly. I was in the ER 3 days ago but I still made it to the race today. I still got a PR today. I dropped almost 1:30! I have never had so much fun fighting for air and running through mud! Go Pointers! 💛💜🎗💜💛
Shout out to my new moms for taking me to the ER last night! There is never anything fun about being in the hospital but you guys made me smile anyway! Its always frustrating when medical staff ignore symptoms. I have to say this was the worst doctor I have ever had to speak with. Not only did he not care about my pain, but he completely disregarded all my symptoms and called them "not normal." No kidding! I don't go to the ER for fun! I have never been discharged from a hospital and then minutes later go into a CT scan. I'm so glad I stood my ground and found a possible cause of the pain. I would have left if my friends hadn't supported me and justified my feelings of uncertainty. Thanks for advocating for me!
Let's talk about the impact sickness has on mental health. It isn't exactly something most people talk about, but it is so Important. When you are diagnosed with cancer, or any chronic illness, the world comes crashing down around you. It is one of the most isolating experiences imaginable. You suddenly are forced to contemplate what it means to be you. I wake up everyday and I see my body fighting so so hard. Sometimes I don't even recognize the body I see. Eventually you come to terms with the fact that you might never get better, but that doesn't mean its easy. Sometimes it's just too much to handle. You realize you will have to fight for normalcy every single day of your life from this day forward. And that is not easy. 8 out of 10 people diagnosed with cancer will struggle with mental health. This cannot be something we hide in the background. When the cancer is gone and your left with a shattered body, there is no one there to pick you up. Everyone assumes remission is the end. Sickness never leaves you. The fear and anxiety is always present. Every ache and pain could mean yet another death sentence. Please work to better understand mental health and reach out to a friend who has been quiet. It may be hard, I get it, but you can help build up a quality of life that is worth battling for. #worldmentalhealthday
Sometimes everything hurts. Sometimes nothing hurts. But usually, something hurts. It's so hard to express the idea that I'm not going to ever feel great. I'm not saying this to be negative. I have accepted that I will never be perfect. I will never feel like I used to. Before my body was ravaged by a disease I can't control. I will always have to fight each day to keep my body where it needs to be. I will continue to gasp for every breath when I run. Lungs don't grow back. Thyroids don't regenerate. I am doing my absolute best to learn and help my body, but no, I will never be perfectly fine. I try to keep it on the side but when I say I'm not doing well, I mean it. Please, do not challenge that. Don't tell me to smile. Don't ask when I'll ever feel good. Just ask what you can do. I'll probably smile then, and explain what's wrong. I'm truly honest with those I trust. Please respect that and apply that to everyone. If your friend is hurting, listen to them. Try to reach out. I will of course become better at managing my illness, but I will never be able to feel amazing. Please do your best to not drift from your friends like this. Just because someone deals with something for a while doesn't necessarily mean it has gotten any easier. Dont be afraid to ask questions. It's the best way to communicate!
Glad to be a part of such a grand cause. Over $56,000 raised for funding for cancer research and support for families. Thank you UWSP!💜💛💜💛💜
I can't even begin to say how proud I am about todays run. It's the farthest run I've done in over three years. Only a half mile short of my farthest run ever! I did lose the feeling in my hands and feet half way through but I pushed through and finished it! The pace was pretty good for where I am health wise too so that was so cool to see. Huge thanks to my team for checking on me during the run and making sure I didn't get lost! 💜💛💜💛
18 phone calls since I got to college. 18 phone calls in three weeks. 18 times I've had to stop my day to argue with doctors and insurance companies in order to keep living my life with quality. I cannot stop taking medications that keep me alive yet my insurance is fighting me on how I can have access to said medications. I stay on top of my symptoms but doctors continue to deny and challenge me as an intelligent individual. I know my body and it is becoming more and more exhausting being me. I feel uniquely unqualified to be living in this body. This body was meant for someone who knows everything. For someone who knows how to heal and maintain. But here I am, doing my best. I'm forever grateful for my friends and family who are helping me learn how to take care of this crazy abnormal body.💛🎗💛🎗💛🎗